Monday, November 15, 2010

Guest Post: A Mother's Prospective

Today I have a very, very special guest post for you guys: my mom! Not only is she a pretty kick a$$ mom but she is also a true Type 1 Diabetes Warrior.  She has spent the past 22 years fighting for a cure not only for me but also for all of you.  She was the Chair of Research for JDRF as well as just finishing her term  this spring on the Advisory Council for the NIDDK. In all these years I've never really asked her about her perspective of my diagnosis 22 years ago. Without further ado, here is my mom...

 Isn't she gorgeous?

There are certain days that are such memorable days that they remain ingrained in one's brain forever....marriage, birth of a child, etc.  And then there are those that we wish  had not occurred.  The diagnosis of diabetes is one of those such moments.  Everyone that has diabetes remembers when and where they were when they were delivered those terrible words.  But as a parent, there are so many other thoughts as well.  Parental instincts kick in, protecting one's child, wishing they could take the disease instead, fear of the future, longing for the past.

All of this occurred when my daughter was diagnosed with Type 1 diabetes.  You try to be strong, try not to let your emotions, your fears show.  But your children know you well and see right through it.  It is such a difficult time.

There is a cliche that says that time is the great healer.... I don't buy it!  But I do know that it softens the blows.  I have always say that when your child is diagnosed with a serious chronic disease you have two choices, you either go into denial or you learn as much as you can about it.  I choose that second option and it has served me well.  In many ways I do understand that it is as well a form of denial.  But that is how I cope.  I became extremely involved with JDRF and spent many, many, many hours volunteering for them.  I do think that my efforts were worthwhile.  But I am extremely sad that even after all these years, we still don't have a cure.  I feel an extreme sense of disappointment and a sadness that I have let my daughter and others down.  I will still work as hard as I can, and I still feel a sense of urgency, but I am sad.

In the mean time, my daughter has kept up her end of the bargain.  She has worked hard to keep herself healthy and she has shown such strength that I never knew she had.  She has been so graceful, loving, understanding of the emotions that "type 3" diabetics have.  Type 3= loved ones of those with diabetes.  I won't say that she has always been this way.  Let it suffice to say that diabetes and the teenage years DO NOT mix.  But I am extremely proud of the young woman she has become.  She would be my friend even if she wasn't my daughter.  I am honored to call her my daughter.

I'm wiping away tears! She is one incredible woman. I know I'm her daughter and extremely biased but she should be your hero for all of her extremely hard work to find us a cure. I know she is my hero. 


  1. How lovely.

    Only 4 years into this, I appreciate the perspective of a veteran mom and your candid statements regarding your disappointment. I think you may go to far to say that you let anyone down. There is only so much any of us can do and by golly, your daughter introduces you with the descriptor of "kick a$$", so certainly she does not seem to feel let down one bit!

  2. This is certainly awesome! Your mom sounds like a great woman, and she obviously has done a great job! Thanks for sharing that perspective.

  3. Diabetes can really be painful. Not physically as much but mentally.. I am a diabetic since last 12 years. I try including exercise in my daily routine and also use Natvia to reduce my sugar intake...